Tuesday, September 19, 2017

UPDATE on my lungs

Earlier on this blog I explained about Idiopathic Pulmonary Fibrosis - a progressive condition of the lungs. In the last couple of weeks I sort of dropped off a cliff. I had been doing pretty well, slow and easily fatigued but had a bad bout of coughing.

A couple of weeks ago I had a CT scan and it shows some progression of the fibrosis. The upshot of it all is that they put me on the oxygen.  I am hoping that will restore some energy -but taking it day to day. I will be getting a portable concentrator to give me a bit more freedom. The little bottles are 2 hours - the concentrator 7-8 on battery. Have a concentrator at home - with a long tube for going all over the house. My version of "golden lasso"
I was on prednisone for 2 weeks and came off cold turkey - have suffered fever and chills and extreme fatigue -but on the mend -nothing infectious shows up. Unlike the lungs -- everything else is in great shape and having the oxygen will help keep everything that way I hope. 

I see a new pulmonologist next week. My old one is retiring. In the meantime I cannot say enough about my provider at Cannon Beach Providence. She has really taken me seriously and is on top of everything -- trying to give me more quality of life.

Happy to answer questions - but prefer no advice -  try not to speculate on what this means. I don't know yet.

October 6 is the funeral for my sister in law who died this week. We sat with her body and told stories- laughed and cried. I did prayers and anointing. Prayers for all the family. She was our family's chief hostess and loved having everyone around. No matter when you showed up she would whip up a meal for you and make you welcome. The last few years she had Alzheimers (or similar condition) these last few years - though she still remembered all of us. An overwhelming infection killed her.

Jim has been amazing -- feel very cared for.  Kristin has been here for a few weeks- very lovely. John our son and Quinn, our grandchild (18 years old now!) come for a visit this week. Great summer seeing all the kids and grands.

Prayers welcome.

Photos: My life this year - before September 1 and after.




6 comments:

Scoop said...

I am so sorry for the loss of your sister-in-law. God bless you and know you are in my prayers, always!

Barbi Click said...

Love to you, Ann. I think of you often and hold you close in prayer. Thank you for the update. It is good to know these things about one another.

Lilylou said...

Hey, you look pretty good in oxygen! Keep on keeping on. You're in my heart and my prayers.

Elizabeth Kaeton said...

Prayers continue from Rehoboth Bay for a continued good relationship with your doctor, the love and support of your spouse, family and friends, and continued membership in a community of faith and prayer. These are the components of an excellent treatment plan. Love to you and yours.

Visit soulistry.com said...

Gentle cyberhug on its way this night.
Prayers on their way each day.
Love floating through the ethernet from me to you.
Hope you can feel it.
Hope you know it.
Hope you can feel and know hope
for I know you know
... the Giver of Hope.
... the Creator of you.
... the Blessed Friend who journeys with you.



Ann said...

Thank you, June, for this.